Lupus!!!
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Lara
Hi all,
I'm hoping some one can help me on this one.
After years of having lots of really odd seemingly unconnected health problems I was referred to a rheumatologist on the grounds of worsening Raynaud's syndrome.
I saw the specialist on saturday morning and she seems to think I have Lupus and is sending me for a whole barrage of blood tests.
Does any one here suffer with Lupus or have relatives with lupus? Any advice is very welcome. This quite worrying to me. The specialist also wants my mum to get tested as she came with me, and the Dr found our skin pigments quite interesting.
Bicnarok
I heard this mentioned on the DR House series once.
Red Nemesis
http://www.picturesforsadchildren.com/index.php?comicID=248
Originally posted by Bicnarok
I heard this mentioned on the DR House series once.
If by 'once' mean on every single episode? Yeah, I think I heard it once too.
AngryManatee
http://images.encyclopediadramatica.com/images/e/e8/Househead6.gif
It's Lupus
shiv
Originally posted by Lara
advice
triple the quantity of fruit and greens you eat. double the variety
The Grey Fox
It's never lupus.
Darth Macabre
Doesn't/Didn't Seal have Lupus? Hence the scars on his face?
Forum Ninja
Do you turn into a Wolf?
Kelly_Bean
I don't know much about it but my Grandma on my Dad's side has it and she's fine! As long as you get treatment for it it shouldn't be a major deal.
Paola
I have a friend that has this friend with Lupus, she just referred she feels tired all the time and has to be under treatment for the rest of her life... that's the only info I got on this
Wish you the best with all my heart Lara!!
Final Blaxican
Originally posted by The Grey Fox
It's never lupus.
UKR
Originally posted by Lara
Hi all,
I'm hoping some one can help me on this one.
After years of having lots of really odd seemingly unconnected health problems I was referred to a rheumatologist on the grounds of worsening Raynaud's syndrome.
I saw the specialist on saturday morning and she seems to think I have Lupus and is sending me for a whole barrage of blood tests.
Does any one here suffer with Lupus or have relatives with lupus? Any advice is very welcome. This quite worrying to me. The specialist also wants my mum to get tested as she came with me, and the Dr found our skin pigments quite interesting.
Will I get furry's disease if I rape you? Oh yeah, could sure go for sum rapin' right about now. raperaperape
Lara
yeah I know Lupus seems to be House's favourite differencial
Thanks Paola, I am tired all the time some days its worse than others even after I've had a really good nights sleep and plenty of rest.
Wolf!!! I bloody well hope not
No as far as I know Lupus in not contagious or infecious, UKR. Also why would you want to rape some one when you dont know what they look like?
Kelly Bean, once its being treated its not too much of a problem from what I was told by the specialist but I know is can also be quite nasty if it gets out of control. I hope its not Lupus though. I could do with out having to take medication for the rest of my life, not to mention the cost of it all
I just wanted to know that it is manageable and that it dosent majorly impact your liftstyle if you do have it.
Got to have the blood tests on thursday and then I'm up for review in three months back at the hospital. Fun Fun Fun!
dadudemon
Originally posted by Forum Ninja
Do you turn into a Wolf?
That's Lupin.
siriuswriter
would it help to look at webmd to see what lupus entails?
or would that make you all "paranoid" and *checking symptoms against self and saying that you have every one of them and freaking you out more than ever*?
Or - I was in the same sort of situation . Just be really firm with your doctor. If you say you want a test, you will, ultimately, get the test.
Lara
no they are doing the test, they told me to have the tests I didnt ask for them. Its all well and good looking at the prognosis in detail but it doesnt tell you what its like to live with lupus, what its like having a flare, blah blah blah.
I'm not one of these people that listens to other people's problems and goes "OMG!!! I have that too!!!! May be I have such and such..whatever".
I take my health quite seriously and alot of my health issues I've had for a long time, they arent new and they havent all afflicted me at the same time.
The thing that bothers me most is that they want my mum to get tested too. At home its just me, my mum and my brother. Coping is a really issue as my brother is physically disabled.
I hope I dont have Lupus. I dont want to be on meds for the rest of my life! I dont like being ill! I have to work god damnit
Forum Ninja
Originally posted by dadudemon
That's Lupin.
Too bad a Lupin is a flower. Canis lupus is the latin term for a Wolf. It was a satire.
So, I should really be the one to do this:
Jovan
I thought it was the wolf-disease too :s What is it exactly? For some weird reason the three sites I tried to open about lupus don't seem to work.
Robtard
Originally posted by Jovan
I thought it was the wolf-disease too :s What is it exactly? For some weird reason the three sites I tried to open about lupus don't seem to work.
Introduction to Lupus
Lupus is an autoimmune disease that can affect various parts of the body, including the skin, joints, heart, lungs, blood, kidneys and brain. Normally the body's immune system makes proteins called antibodies, to protect the body against viruses, bacteria, and other foreign materials. These foreign materials are called antigens.
In an autoimmune disorder like lupus, the immune system cannot tell the difference between foreign substances and its own cells and tissues. The immune system then makes antibodies directed against itself. These antibodies -- called "auto-antibodies" (auto means 'self') -- cause inflammation, pain and damage in various parts of the body.
Inflammation is considered the primary feature of lupus. Inflammation, which in Latin means "set on fire," is characterized by pain, heat, redness, swelling and loss of function, either on the inside or on the outside of the body (or both).
For most people, lupus is a mild disease affecting only a few organs. For others, it may cause serious and even life-threatening problems. Although epidemiological data on lupus is limited, studies suggest that more than 16,000 Americans develop lupus each year.
The Lupus Foundation of America (LFA) estimates between 1.5 - 2 million Americans have a form of lupus, but the actual number may be higher. More than 90 percent of people with lupus are women. Symptoms and diagnosis occur most often when women are in their child-bearing years, between the ages of 15 and 45.
In the United States, lupus is more common in African Americans, Latinos, Asians, and Native Americans than in Caucasians.
(Another reason why white-males are so awesome.)
dadudemon
Originally posted by Forum Ninja
Too bad a Lupin is a flower. Canis lupus is the latin term for a Wolf. It was a satire.
So, I should really be the one to do this:
jinXed by JaNx
Originally posted by Lara
Hi all,
I'm hoping some one can help me on this one.
After years of having lots of really odd seemingly unconnected health problems I was referred to a rheumatologist on the grounds of worsening Raynaud's syndrome.
I saw the specialist on saturday morning and she seems to think I have Lupus and is sending me for a whole barrage of blood tests.
Does any one here suffer with Lupus or have relatives with lupus? Any advice is very welcome. This quite worrying to me. The specialist also wants my mum to get tested as she came with me, and the Dr found our skin pigments quite interesting.
What symptoms are you experiencing that leads your Dr. to believe you may have Lupus? The chances that you have Lupus are pretty slim. Lupus is generally found in darker skinned people...,Greeks, Italians and African Americans. The symptoms of Lupus are also very similar to several other diseases, most notably...MS. So, don't get to worried, maybe you just have a bad bug
or MS
lol jk
i'm sure you dont have MS.
Try not to worry until you get the results from your blood work. Lupus is a very treatable disease, unless, you have a severe case but you don't. Hopefully your ailments are due to simple explanations and not an autoimmune disease. Again, you shouldn't worry because, worst case scenario..., Lupus is generally very easily treated with diet and medications. Depending on the results of your blood work you should think about getting a second opinion if the diagnosis is Lupus. The medications can be quite expensive. I wish you the best and keep us updated.
Lara
was booking if for a blood test as my GP's this morning for a full blood count and they turned me away saying it would be better for me to have it done at the hospital as I have two forms for specialist blood tests to have done there.
So monday morning, Kingston hospital, Haematology department here I come! lets hope they leave me with some blood left in me
shiv
Yeah don't go croak on us
Symmetric Chaos
Originally posted by Forum Ninja
Too bad a Lupin is a flower. Canis lupus is the latin term for a Wolf. It was a satire.
So, I should really be the one to do this:
Well lupus is the Latin word for wolf (which is German for extra points). Canis lupus is the scientific term for the timber wolf which uses Latin but doesn't translate back perfectly.
But only an jerk would point out something like than anyway.
Jack Daniels
I have a relative with lupus....not a joke...lara dont mess around that can blow your mind and body..careful with drinking too...the relative that has it is a nurse...shes lived a long time with it...so much to deal with...on a sobering up note xoxo girl
Lara
I very rarely drink.
The first blood test I had done a few weeks ago came back that my protective colestrol was low and the my LFT was off, they seem to think I have drink problem, they keep asking. I have explained to them I had severe infantile jaundice when I was born, my mum said I looked like one of the simpsons
That combined with all my other problems the Rheumy thinks its Lupus.
Have had chronic migraines for the last month, GP has put me on Tramadol to phase out the pain so I can still work and has referred me for a CT scan.
I think its fair to say I'm Sh*t it.
Jack Daniels
tramadol is good no buzz (my birthmother got a speed buzz from it) but is great for migraines (broken neck caused mine) so keep taking that for now...I will relay what you typed above to my stepmom...take care of your pain though!!!!!!!! if you have lupus as I discussed with stepmom last night...STRESS is the worst...pain management big deal..anyways I will hush till I talk to her she has loads of info!
shiv
Originally posted by Jack Daniels
(broken neck caused mine)
yeah that can be a pain in the neck
Jack Daniels
yeah jokng about serious stuff is a joke...bet I can still drink u under the table though..lol
shiv
ha! not if I splice your drink with lupus
sk8stuff09
my mother has lupus, she was diagnosed a few years back. (she's in her late 40's) If properly treated, you'll be just fine. My mom experiences alot of fatigue and joint pain, but recently shes been on heavy treatment and is recovering. Nothing too serious though, she still lives her normal life like before, I mention that cause I saw you were afraid it would mess with your work, as long as your rheumatologist is treating you, youll be fine.
Lara
thanks guys. The hospital took 11 viles of blood, then asked me who I had pissed off
So yeah thats the blood tests out the way. I will get the results in about a month I think.
Next up is a CT scan which me GP has referred me for to find out why all of a sudden I'm having recurring migraines every few days. I'm waiting for the letter from the hospital to give me the appoinment time and date.
So I'm just poodling along at the moment. I know if if the results come back conclusive its not the end of the world I'll just have to change a few things, maybe look for a well paid part time job instead of a full time one so I can get the rest I need. Fatigue is a big issue for me.
If they dont find anything then I'm gonna be like "What the F**K!!!!"
on to the next lot of tests
Deja~vu
11 viles??? I'm so sorry lara.
If it makes you feel any better, I was exposed to TB....
Oh and I had a CScan before, but MRI's are better (cool to look at), yeah had one of those too...Oh and I always like to look at my stuff. LOL.
Lara
I like to know whats going on as well.
did you not have the TB vaccination?
Next appointment with the Rheumy is 9.30 am on friday the 19th of june. Lets hope she has some thing interesting to tell me.
I now have a nice bruise in the crease of my left arm from where they drew the blood, kinda hurts. but oh well
ItsRambo
my sister had it loss alot of hair but it grew back i would recommed start buying hats
Deja~vu
Originally posted by Lara
I like to know whats going on as well.
did you not have the TB vaccination?
Next appointment with the Rheumy is 9.30 am on friday the 19th of june. Lets hope she has some thing interesting to tell me.
I now have a nice bruise in the crease of my left arm from where they drew the blood, kinda hurts. but oh well
They don't give out vaccinations here.
If you test positive with a skin test it's like OMG!! They put a mask on you and send you to the hospital looking so glamorous...lol, then they take your chest x-ray. If it isn't in your chest then you are cleared of being a contaminant. Then they stick you with 9 months of antibiotics just in case..
By this time youre whole body is screwed up by the antibiotics...
Then when you tell people, no one wants to kiss you.
And youre like "WTF, you can't get it that way, dummy!" HAHAHA
But everyone you tell runs to the hospital to get tested anyway......LOL
But if it is in your lungs then you are isolated for awhile.
You'll be Okay, lara.
Blessed Be
Lara
Damn, I had my vaccination at school when I was 13, I was the lucky one out of my year, no reaction and no scar, I have absolutely no scar at all
There must have been a misunderstanding some where between My GP the hospital and myself. My GP left me a voice mail last week saying I was having the CT scan late afternoon today, but I hadnt recieved a letter from the hospital yet.
So I rang the doctors surgery and asked to speak to my GP, he wasnt there.
So I rang the radiology department at the hospital and explained that my GP had left me a message about the appointment and that it had been an urgent referral Blah, Blah, Blah. Radiology told me that the referral was not down as being urgent, there was no way in hell I was getting scanned today and that a letter fo an appointment was on its way to me in the post and I could be waiting another 3wks before having the scan done.
So I guess for the time being I'll just have to bash my skull in on the wall until the pain and the migraines stop!
Which reminds me I need to put in a repeat prescription for Maxalt and Tramadol. nearly out not good
Guess I have to see my GP 2moro I dont think I can get those on repeat with out him seeing me.
Jack Daniels
you have to wait a month...?? damn ...the migraines...umm I seem to remember that wifeys doc said when she use to have hers to much caffeine contributed but then I never understood that as excedrin migraine medicine has caffeine in it???maybe something to look into to in mean time???
Lara
I drink decaf coffee and decaf soft drinks. so not caffine. I avoid dairy products (especially cheese and chocolate) and strong light and smells too. still no luck. I've been migraine free for a few days but still have a headache but I can deal with it.
Deja~vu
Don't have anything made with RED dye like jello, pop, candy, frostings and such stuff. I hear that has helped with headaches.
WhoopeeDee
Originally posted by Lara
Hi all,
I'm hoping some one can help me on this one.
After years of having lots of really odd seemingly unconnected health problems I was referred to a rheumatologist on the grounds of worsening Raynaud's syndrome.
I saw the specialist on saturday morning and she seems to think I have Lupus and is sending me for a whole barrage of blood tests.
Does any one here suffer with Lupus or have relatives with lupus? Any advice is very welcome. This quite worrying to me. The specialist also wants my mum to get tested as she came with me, and the Dr found our skin pigments quite interesting.
No one I know have Lupus. Hope you feel better.
The only thing I have is lack of Iron in my blood. Sooo....I just...gotta feel....so sleeepy.....zzzz.
Lara
I think multi-vits with added iron help with that or the Dr can prescribe some thing for it. I do hear that iron sups to bind you up tho
Jack Daniels
my doc told me I could double or triple my script on ultram to counteract the pain...ask your doc if that would be okay... the tramadol helped me
Deja~vu
Originally posted by Lara
I think multi-vits with added iron help with that or the Dr can prescribe some thing for it. I do hear that iron sups to bind you up tho
Yeah, they do so eat more raw fruit or veggies.
Lara
Ok so saw my GP on monday he was furious that I hadnt had the CT scan when he had scheduled it (last thrusday) god knows what he said to the hospital but 5mins after leaving the surgery I had a call from the radiology dept asking if I could go in that afternoon for 3.50 to have the scan done.
So scan out the way and just waiting for the results. My GP told me to keep my phone on and charged. I think he is going to phone the results through to me. I will either get them today or tomorrow.
I know it sound pissy but I'm really starting to get worried about this, as most of the tests have come back inconclusive. the most they have turned up so far is low chlorestral, low vit D and abnormal LFT. I think if this shows up nothing I'm up for a contracts CT or MRI.
Getting really fed up.
Deja~vu
Low cholesterol is a good thing though.
Paola
*crosses fingers for good news*
Xtrm
Originally posted by Lara
Hi all,
I'm hoping some one can help me on this one.
After years of having lots of really odd seemingly unconnected health problems I was referred to a rheumatologist on the grounds of worsening Raynaud's syndrome.
I saw the specialist on saturday morning and she seems to think I have Lupus and is sending me for a whole barrage of blood tests.
Does any one here suffer with Lupus or have relatives with lupus? Any advice is very welcome. This quite worrying to me. The specialist also wants my mum to get tested as she came with me, and the Dr found our skin pigments quite interesting.
My step mother has Lupus skin cancer. It doesn't seem to be too serious because she's known to have it for about 15 years now. Of course there may be different stages and seriousness of the condition. She just can't stay in the sun for long periods at a time.
Lara
well bloods are back nothing showed apart from a vitamin D deficiency. I'm really stumped. I have a funny feeling they are gonna say ME/CFS. no CT results yet, I get them monday now.
leonheartmm
^hope lady luck smiles on you
Lara
And she did indeed! CT results were normal. I've been put in pizotifen as a preventative for a trial month. Will be referred to neurologist soon. Still dont see rheumy til june.
The fun will be when she says "There is nothing physically worng with you"
doesnt explain why I'm fighting to get out of bed every day with all sorts of odd symptoms.
leonheartmm
^same here. sumtimes i feal like doctors are useless shits! lol, ****ing pyrexia of unknown origin. but glad to know your healthyER than you cud have been.
Lara
thanks
shiv
Originally posted by Lara
doesnt explain why I'm fighting to get out of bed every day with all sorts of odd symptoms.
B. H.
Lara
yeah its really bad health when I'm a physically healthy 22yr old.
So far all they have found is a vitamin D decifiency which I'm taking suppliments twice a day for.
just seems like one big sh*tty enigma.
leonheartmm
anemia - haemoglobin deficiency
http://en.wikipedia.org/wiki/Anemia
hepatitus
http://en.wikipedia.org/wiki/Hepatitus
Fibromyalgia - ur not a depressive are you?
http://en.wikipedia.org/wiki/Fibromyalgia
Tuberculosis
http://en.wikipedia.org/wiki/Tuberculosis
pyrexia of unknown origin
http://en.wikipedia.org/wiki/Pyrexia_of_unknown_origin
ask your physician about each one of these specifically and see for yourself if the symptoms you have corellate. hope this is helpful.
Lara
nope noe of those.
I had 3 full blood counts done, auto-immune blood tests, CT scan and full physical exam. nothing so far apart from the Vit D Deficiency.
I have a list of 30 odd symptoms and nothing usful has come from it yet. All the doctors can say it that they are puzzeled. They say it COULD be lupus, but blood tests have ruled that out (not confirmed yet) or it could be ME/CFS.
Thankyou for your research Leon, its much appreciated and yes I am a depressive have been for a long time. I am currently taking prozac to sort that out.
leonheartmm
hmmmm, srry to hear that................... was the ct scan directed towards finding any cists or tumours????? brain or a gland with tumour can be responsible for such a thing when its not working well for any reason.
you shud work out regularly if you dont already. it can always help unless you have puo.
hope you get well soon.
Lara
with the CT it was straight forwards, not a contrast or anything like that. Just a plain CT. They were looking for anything that was abnormal, however they found nothing, good for me! I dont want my head being sliced into
Having problems with the Pizotifen. It is causing nightmares and mood changes, muscle weakness and ridiculosly quick weight gain. I've tried to get to see my Dr but he's on holiday and isnt back until next monday, so I have made a telephone appointment for when he comes back. Headaches arent so bad now but I'm still having them every day.
I fell like some freakish new breed at the moment. All the tests and medication. I swear, if you pick me up and shake me, I will rattle like a box of tic-tacs
leonheartmm
^but there is a silver lining here. if you becoming bulimic/anorexic to counteract the weight gain, it will combine with the muscle weakness to give you a higher high than most drugs!!!!!!!!!!!!!
Lara
no chance of me becoming either bulimic or anorexic I like food too much. I just think its a little worrying to have gained 7lbs in a week. I've never done that! I'm trying to counter act it by doing more exercise but it doesnt seem to be working
Lara
I spoke to my doctor yesterday regarding the medication I'm on for the headaches and he seemed quite surprised that I was gaining weigth rather than lossing it!
Believe me if I was lossing weight I wouldnt be complaining about it
He's called me in for an appointment on friday afternoon. He wants to cover every thing from the begining so I'm guessing its full med history and call past and current conditions and medications and a more scrupulus look as my blood screen, he said I've got the most extensive one he's seen in a long time.
At least he is taking me seriously, all my previous doctors have shooed me out of their surgeries for being a time waster. I'm not wasting time. I genuinley dont feel well. they just cant figure out why
Lara
in terms of the headaches the new treatment took me by surprise, it didnt even cross my mind!
My doctor thinks I may have a chronic case of sinusitis which has spread from the lower sinuses where I usually get it to the upper sinuses which has aggrevated the nerves running up across the top of my head.
I tend to get sinusitis quite alot but it didnt even occur to me this time. no other pain apart from a headache. Odd.
so I'm on some really cool decongestant and an intensive course of doxycycline for two weeks, then I see my doctor again.
Ace of Knaves
Originally posted by Lara
Hi all,
I'm hoping some one can help me on this one.
After years of having lots of really odd seemingly unconnected health problems I was referred to a rheumatologist on the grounds of worsening Raynaud's syndrome.
I saw the specialist on saturday morning and she seems to think I have Lupus and is sending me for a whole barrage of blood tests.
Does any one here suffer with Lupus or have relatives with lupus? Any advice is very welcome. This quite worrying to me. The specialist also wants my mum to get tested as she came with me, and the Dr found our skin pigments quite interesting.
That really does suck. Of the two people I know that have lupus both are subscribers to the more conservative method of governance. However, lupus is an expensive and costly affliction. You are right to assume that your disease has a lot to do with previous afflictions and preventable disease. For every cold we catch the situation gets worse. Everytime we get the flu or a virus, we pave the way for the next disease. Viruses don't go away. They become a part of our every day existence. We stomp out the flu this week, but that is because we'll have to live with that version of the virus of the flu for the rest of our lives. Steroids and anti-biotics and vaccinations are why we have things like the bird flu or the swine flu or SARS and new versions of hepatitis. Smoke more weed and stop pretending that every 3rd world outbreak is going to kill you.
Smoke more weed, have a drink and maybe buy an 8 ball every now and again. Stop pretending that a man in a white lab coat is your most trusted and bestest friend. My pharmacist doesn't acept personal checks, but my weed dealer does. That should say something.
Lara
@lol: interesting insight you have there and its propbably the truth too
No its not that I think my dr and I should be glued at the hip or that he can answer every one of my mand questions.
It's simply that I'm sick of being ill all the time. It affects the way you life your life and people get pissed at you.
At least if its sinusitis I can treat it, prevent future attacks and get on with my life. I never knew chronic sinusitis could make one feel so deflated, for lack of a better word
Lara
update:
Ok after having read the whole thread, I owe you guys an update.
No it wasnt sinusitis bad news for me!
several more visits to the Rheumy and loads of bloods tests later and they are now back to the first conculsion! LUPUS.
This morning I picked up a prescription for Hydroxychloroquine (Plaquenil) for a 4wk trial to see if amy thing improves.
Still having headaches, STILL waiting to see the neurologist. Malar rash has developed on my face, not nice!
. I'm losing me hair, so I'm having it all cut off in the next few weeks. muscle and joint pain, flu like symptoms, recurrent colds blah blah blah and the list goes on.
next blood test in august, the rheumy is back to checking LFT's and I see him again in october. so for now its just me and my GP. Oh joy! Oh fun!
I lost my job in march as I just couldnt manage it due to all of the above. now on sick ness benefits and have to have a medical for it.
Life really sucks right now. oh well, sh*t happens!
ADarksideJedi
I heard of it but don't know too much about it .I would go on MD Website and look it up there.
dadudemon
Originally posted by Sorgo XIII
Wait ... Why are you laughing at yourself?
No, I'm laughing at you.
Google search Lupin and see if you run across a one Prof. Lupin. then it will make sense why "Lupin" was capitalized and Lara thought it was funny.
(Yes, I know he's a banned troll, but he frequents this forum.)
Lara
damn! I didnt think I could feel any worse but I guess I was wrong! hope these side effects ware off soon.
arva wong
God i don't know what to say,there must be so much pain u have been suffering that we can't imagine,and i hope u will get better,i can do nothing here but praying,please don't give it up,u'll be fine.
Lara
I'm not giving up, hell no. Its just some days you get up and you're like " here I go again! whats the point?" it just gets on top of you.
My family think its all a load of crap, thats what I get when my mum doesnt come to the Drs with me. Sucks, big time.
So I have to go for this medical next week the form was bad enough
can I bend down to pick up a tissue? so days yes some days no. Can I lift a cup? some days yes some days no. Can I dress myself? well you know when things are that bad I stay in bed all day an sleep cause there is nothing else I can do
so yeah either they will deem me fit for work or not. if they do I'm screwed. thats why I lost my job in the first place.
some time you really have to just sit back and laugh at life other wise you'd crackup due to the pressue.
jaden101
Out of curiosity...And because I haven't read the thread. Has myalgic encephalomyelitis/Chronic Fatigue Syndrome been ruled out?
Lara
it hasnt even been discussed. then again I think the Rheumy is going off of my ANA results. 1st was pos the 2nd was borderline waiting on results from last lot of tests. also lots of skin rashes, sun related especially face.
Lara
GGGGGRrrrrrrrrrrr this hot weather does me no favours at all! then again if it were cold I'd be complaining about that too
StarCraft2
treatment = prednisones/corticosteroids.
avoid sun
avoid stress
report to MD about swelling/anaphylactic shock
Jack Daniels
I got the hots for lara...did I type that out loud?? wait Im not in the milk bar anymore ....xoxo lara..Im outta here b4 I get banned er somethin
Lara
Ok so my health centre called, they said its time to steal some more of my blood, Oh Yay!
will let you know .
Robtard
I'm going through something similar, went from being a pillar of health to having daily headaches, fatigue and lots of joint paint, been about 5 weeks now, though today is the first day in a long time I've woken up not being exhausted, my joints don't hurt much and I've only have a very mild headache at the moment.
Had a Cat Scan, spinal-tap and they've taken 11 vials of blood. So far all they can tell me is what I don't have. Still waiting on the doctor to call me back, as there's three test he ordered that haven't come in yet.
F me, hope it's not Lupus.
King Castle
you must be rich with great medical insurance or your doctor is house.. not sure if either is good for you
Lara
I dont need medical insuranced, I live in the uk.
Rob, I'm sorry you feel so crappy. I know it doesnt sound like very much but I'm glad the Dr's a paying attention to your issues. Its taken mine 3 years to do anything. all they tell me is to rest. yeah there is only so much sitting or laying in bed watching tv you can take!
Robtard
Thx, Lara.
I have a feeling those other three test will come back negative and he'll just say "here, takes more pain killers", it's what US doctors love to do, unfortunately.
Lara
well unfortunately Lupus is one of those illnesses that can hide. I was lucky I got a positive ANA on the first run. but dont let them fob you off. you are quite within your rights to seek a second opinion. certainly you should be seeing a Rheumatologist at least.
Lara
well they only stole 2 viles this time but my general practitioner knows diddly squat about lupus so it was kinda pointless.
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