Lupus!!!

Started by Robtard5 pages
Originally posted by Jovan
I thought it was the wolf-disease too 😖 What is it exactly? For some weird reason the three sites I tried to open about lupus don't seem to work.

Introduction to Lupus

Lupus is an autoimmune disease that can affect various parts of the body, including the skin, joints, heart, lungs, blood, kidneys and brain. Normally the body's immune system makes proteins called antibodies, to protect the body against viruses, bacteria, and other foreign materials. These foreign materials are called antigens.

In an autoimmune disorder like lupus, the immune system cannot tell the difference between foreign substances and its own cells and tissues. The immune system then makes antibodies directed against itself. These antibodies -- called "auto-antibodies" (auto means 'self'😉 -- cause inflammation, pain and damage in various parts of the body.

Inflammation is considered the primary feature of lupus. Inflammation, which in Latin means "set on fire," is characterized by pain, heat, redness, swelling and loss of function, either on the inside or on the outside of the body (or both).

For most people, lupus is a mild disease affecting only a few organs. For others, it may cause serious and even life-threatening problems. Although epidemiological data on lupus is limited, studies suggest that more than 16,000 Americans develop lupus each year.

The Lupus Foundation of America (LFA) estimates between 1.5 - 2 million Americans have a form of lupus, but the actual number may be higher. More than 90 percent of people with lupus are women. Symptoms and diagnosis occur most often when women are in their child-bearing years, between the ages of 15 and 45.

In the United States, lupus is more common in African Americans, Latinos, Asians, and Native Americans than in Caucasians.

(Another reason why white-males are so awesome.)

Originally posted by Forum Ninja
Too bad a Lupin is a flower. Canis lupus is the latin term for a Wolf. It was a satire.

So, I should really be the one to do this: 😐

😆 😆 😆

Re: Lupus!!!

Originally posted by Lara
Hi all,

I'm hoping some one can help me on this one.

After years of having lots of really odd seemingly unconnected health problems I was referred to a rheumatologist on the grounds of worsening Raynaud's syndrome.

I saw the specialist on saturday morning and she seems to think I have Lupus and is sending me for a whole barrage of blood tests.

Does any one here suffer with Lupus or have relatives with lupus? Any advice is very welcome. This quite worrying to me. The specialist also wants my mum to get tested as she came with me, and the Dr found our skin pigments quite interesting.

What symptoms are you experiencing that leads your Dr. to believe you may have Lupus? The chances that you have Lupus are pretty slim. Lupus is generally found in darker skinned people...,Greeks, Italians and African Americans. The symptoms of Lupus are also very similar to several other diseases, most notably...MS. So, don't get to worried, maybe you just have a bad bug 😉 or MS 🙁 lol jk 😉 i'm sure you dont have MS.

Try not to worry until you get the results from your blood work. Lupus is a very treatable disease, unless, you have a severe case but you don't. Hopefully your ailments are due to simple explanations and not an autoimmune disease. Again, you shouldn't worry because, worst case scenario..., Lupus is generally very easily treated with diet and medications. Depending on the results of your blood work you should think about getting a second opinion if the diagnosis is Lupus. The medications can be quite expensive. I wish you the best and keep us updated.

Originally posted by dadudemon
😆 😆 😆

Wait ... Why are you laughing at yourself? 😐

was booking if for a blood test as my GP's this morning for a full blood count and they turned me away saying it would be better for me to have it done at the hospital as I have two forms for specialist blood tests to have done there.

So monday morning, Kingston hospital, Haematology department here I come! lets hope they leave me with some blood left in me 😂

Yeah don't go croak on us

Originally posted by Forum Ninja
Too bad a Lupin is a flower. Canis lupus is the latin term for a Wolf. It was a satire.

So, I should really be the one to do this: 😐

Well lupus is the Latin word for wolf (which is German for extra points). Canis lupus is the scientific term for the timber wolf which uses Latin but doesn't translate back perfectly.

But only an jerk would point out something like than anyway.

😖

I have a relative with lupus....not a joke...lara dont mess around that can blow your mind and body..careful with drinking too...the relative that has it is a nurse...shes lived a long time with it...so much to deal with...on a sobering up note xoxo girl

I very rarely drink.

The first blood test I had done a few weeks ago came back that my protective colestrol was low and the my LFT was off, they seem to think I have drink problem, they keep asking. I have explained to them I had severe infantile jaundice when I was born, my mum said I looked like one of the simpsons 😂

That combined with all my other problems the Rheumy thinks its Lupus.

Have had chronic migraines for the last month, GP has put me on Tramadol to phase out the pain so I can still work and has referred me for a CT scan.

I think its fair to say I'm Sh*t it. 😖

tramadol is good no buzz (my birthmother got a speed buzz from it) but is great for migraines (broken neck caused mine) so keep taking that for now...I will relay what you typed above to my stepmom...take care of your pain though!!!!!!!! if you have lupus as I discussed with stepmom last night...STRESS is the worst...pain management big deal..anyways I will hush till I talk to her she has loads of info!

Thnks JD hug

Originally posted by Jack Daniels
(broken neck caused mine)

yeah that can be a pain in the neck

yeah jokng about serious stuff is a joke...bet I can still drink u under the table though..lol

ha! not if I splice your drink with lupus

my mother has lupus, she was diagnosed a few years back. (she's in her late 40's) If properly treated, you'll be just fine. My mom experiences alot of fatigue and joint pain, but recently shes been on heavy treatment and is recovering. Nothing too serious though, she still lives her normal life like before, I mention that cause I saw you were afraid it would mess with your work, as long as your rheumatologist is treating you, youll be fine.

thanks guys. The hospital took 11 viles of blood, then asked me who I had pissed off 😂 So yeah thats the blood tests out the way. I will get the results in about a month I think.

Next up is a CT scan which me GP has referred me for to find out why all of a sudden I'm having recurring migraines every few days. I'm waiting for the letter from the hospital to give me the appoinment time and date.

So I'm just poodling along at the moment. I know if if the results come back conclusive its not the end of the world I'll just have to change a few things, maybe look for a well paid part time job instead of a full time one so I can get the rest I need. Fatigue is a big issue for me.

If they dont find anything then I'm gonna be like "What the F**K!!!!" 😂 on to the next lot of tests

11 viles??? I'm so sorry lara.

If it makes you feel any better, I was exposed to TB.... 🙁 😂

Oh and I had a CScan before, but MRI's are better (cool to look at), yeah had one of those too...Oh and I always like to look at my stuff. LOL.

I like to know whats going on as well. 😂 did you not have the TB vaccination?

Next appointment with the Rheumy is 9.30 am on friday the 19th of june. Lets hope she has some thing interesting to tell me. 😂

I now have a nice bruise in the crease of my left arm from where they drew the blood, kinda hurts. but oh well 😂

my sister had it loss alot of hair but it grew back i would recommed start buying hats