Lupus!!!

anemia - haemoglobin deficiency
http://en.wikipedia.org/wiki/Anemia

hepatitus
http://en.wikipedia.org/wiki/Hepatitus

Fibromyalgia - ur not a depressive are you?
http://en.wikipedia.org/wiki/Fibromyalgia

Tuberculosis
http://en.wikipedia.org/wiki/Tuberculosis

pyrexia of unknown origin
http://en.wikipedia.org/wiki/Pyrexia_of_unknown_origin

ask your physician about each one of these specifically and see for yourself if the symptoms you have corellate. hope this is helpful.

nope noe of those.

I had 3 full blood counts done, auto-immune blood tests, CT scan and full physical exam. nothing so far apart from the Vit D Deficiency.

I have a list of 30 odd symptoms and nothing usful has come from it yet. All the doctors can say it that they are puzzeled. They say it COULD be lupus, but blood tests have ruled that out (not confirmed yet) or it could be ME/CFS.

Thankyou for your research Leon, its much appreciated and yes I am a depressive have been for a long time. I am currently taking prozac to sort that out.

hmmmm, srry to hear that................... was the ct scan directed towards finding any cists or tumours????? brain or a gland with tumour can be responsible for such a thing when its not working well for any reason.

you shud work out regularly if you dont already. it can always help unless you have puo.

hope you get well soon.

with the CT it was straight forwards, not a contrast or anything like that. Just a plain CT. They were looking for anything that was abnormal, however they found nothing, good for me! I dont want my head being sliced into 😂

Having problems with the Pizotifen. It is causing nightmares and mood changes, muscle weakness and ridiculosly quick weight gain. I've tried to get to see my Dr but he's on holiday and isnt back until next monday, so I have made a telephone appointment for when he comes back. Headaches arent so bad now but I'm still having them every day.

I fell like some freakish new breed at the moment. All the tests and medication. I swear, if you pick me up and shake me, I will rattle like a box of tic-tacs 😂

^but there is a silver lining here. if you becoming bulimic/anorexic to counteract the weight gain, it will combine with the muscle weakness to give you a higher high than most drugs!!!!!!!!!!!!!

no chance of me becoming either bulimic or anorexic I like food too much. I just think its a little worrying to have gained 7lbs in a week. I've never done that! I'm trying to counter act it by doing more exercise but it doesnt seem to be working 🙁

I spoke to my doctor yesterday regarding the medication I'm on for the headaches and he seemed quite surprised that I was gaining weigth rather than lossing it!

Believe me if I was lossing weight I wouldnt be complaining about it 😂

He's called me in for an appointment on friday afternoon. He wants to cover every thing from the begining so I'm guessing its full med history and call past and current conditions and medications and a more scrupulus look as my blood screen, he said I've got the most extensive one he's seen in a long time.

At least he is taking me seriously, all my previous doctors have shooed me out of their surgeries for being a time waster. I'm not wasting time. I genuinley dont feel well. they just cant figure out why 😂

in terms of the headaches the new treatment took me by surprise, it didnt even cross my mind!

My doctor thinks I may have a chronic case of sinusitis which has spread from the lower sinuses where I usually get it to the upper sinuses which has aggrevated the nerves running up across the top of my head.

I tend to get sinusitis quite alot but it didnt even occur to me this time. no other pain apart from a headache. Odd.

so I'm on some really cool decongestant and an intensive course of doxycycline for two weeks, then I see my doctor again.

Originally posted by Lara
Hi all,

I'm hoping some one can help me on this one.

After years of having lots of really odd seemingly unconnected health problems I was referred to a rheumatologist on the grounds of worsening Raynaud's syndrome.

I saw the specialist on saturday morning and she seems to think I have Lupus and is sending me for a whole barrage of blood tests.

Does any one here suffer with Lupus or have relatives with lupus? Any advice is very welcome. This quite worrying to me. The specialist also wants my mum to get tested as she came with me, and the Dr found our skin pigments quite interesting.

That really does suck. Of the two people I know that have lupus both are subscribers to the more conservative method of governance. However, lupus is an expensive and costly affliction. You are right to assume that your disease has a lot to do with previous afflictions and preventable disease. For every cold we catch the situation gets worse. Everytime we get the flu or a virus, we pave the way for the next disease. Viruses don't go away. They become a part of our every day existence. We stomp out the flu this week, but that is because we'll have to live with that version of the virus of the flu for the rest of our lives. Steroids and anti-biotics and vaccinations are why we have things like the bird flu or the swine flu or SARS and new versions of hepatitis. Smoke more weed and stop pretending that every 3rd world outbreak is going to kill you.

Smoke more weed, have a drink and maybe buy an 8 ball every now and again. Stop pretending that a man in a white lab coat is your most trusted and bestest friend. My pharmacist doesn't acept personal checks, but my weed dealer does. That should say something.

@lol: interesting insight you have there and its propbably the truth too 😂

No its not that I think my dr and I should be glued at the hip or that he can answer every one of my mand questions.

It's simply that I'm sick of being ill all the time. It affects the way you life your life and people get pissed at you.

At least if its sinusitis I can treat it, prevent future attacks and get on with my life. I never knew chronic sinusitis could make one feel so deflated, for lack of a better word 😂

update:

Ok after having read the whole thread, I owe you guys an update.

No it wasnt sinusitis bad news for me!

several more visits to the Rheumy and loads of bloods tests later and they are now back to the first conculsion! LUPUS.
This morning I picked up a prescription for Hydroxychloroquine (Plaquenil) for a 4wk trial to see if amy thing improves.

Still having headaches, STILL waiting to see the neurologist. Malar rash has developed on my face, not nice! 🙁. I'm losing me hair, so I'm having it all cut off in the next few weeks. muscle and joint pain, flu like symptoms, recurrent colds blah blah blah and the list goes on.

next blood test in august, the rheumy is back to checking LFT's and I see him again in october. so for now its just me and my GP. Oh joy! Oh fun!

I lost my job in march as I just couldnt manage it due to all of the above. now on sick ness benefits and have to have a medical for it.

Life really sucks right now. oh well, sh*t happens!

I heard of it but don't know too much about it .I would go on MD Website and look it up there.

Originally posted by Sorgo XIII
Wait ... Why are you laughing at yourself? 😐

No, I'm laughing at you.

Google search Lupin and see if you run across a one Prof. Lupin. then it will make sense why "Lupin" was capitalized and Lara thought it was funny.

😐

(Yes, I know he's a banned troll, but he frequents this forum.)

damn! I didnt think I could feel any worse but I guess I was wrong! hope these side effects ware off soon. 🙁

God i don't know what to say,there must be so much pain u have been suffering that we can't imagine,and i hope u will get better,i can do nothing here but praying,please don't give it up,u'll be fine.

I'm not giving up, hell no. Its just some days you get up and you're like " here I go again! whats the point?" it just gets on top of you.

My family think its all a load of crap, thats what I get when my mum doesnt come to the Drs with me. Sucks, big time.

So I have to go for this medical next week the form was bad enough 😂 can I bend down to pick up a tissue? so days yes some days no. Can I lift a cup? some days yes some days no. Can I dress myself? well you know when things are that bad I stay in bed all day an sleep cause there is nothing else I can do 😂

so yeah either they will deem me fit for work or not. if they do I'm screwed. thats why I lost my job in the first place.

some time you really have to just sit back and laugh at life other wise you'd crackup due to the pressue.

Out of curiosity...And because I haven't read the thread. Has myalgic encephalomyelitis/Chronic Fatigue Syndrome been ruled out?

it hasnt even been discussed. then again I think the Rheumy is going off of my ANA results. 1st was pos the 2nd was borderline waiting on results from last lot of tests. also lots of skin rashes, sun related especially face.

GGGGGRrrrrrrrrrrr this hot weather does me no favours at all! then again if it were cold I'd be complaining about that too 😂

treatment = prednisones/corticosteroids.

avoid sun
avoid stress

report to MD about swelling/anaphylactic shock