Lupus!!!

Originally posted by Lara
I like to know whats going on as well. 😂 did you not have the TB vaccination?

Next appointment with the Rheumy is 9.30 am on friday the 19th of june. Lets hope she has some thing interesting to tell me. 😂

I now have a nice bruise in the crease of my left arm from where they drew the blood, kinda hurts. but oh well 😂

If you test positive with a skin test it's like OMG!! They put a mask on you and send you to the hospital looking so glamorous...lol, then they take your chest x-ray. If it isn't in your chest then you are cleared of being a contaminant. Then they stick you with 9 months of antibiotics just in case.. 😕 By this time youre whole body is screwed up by the antibiotics...

Then when you tell people, no one wants to kiss you. 😂

And youre like "WTF, you can't get it that way, dummy!" HAHAHA

But everyone you tell runs to the hospital to get tested anyway......LOL

But if it is in your lungs then you are isolated for awhile.

You'll be Okay, lara.

Blessed Be

Damn, I had my vaccination at school when I was 13, I was the lucky one out of my year, no reaction and no scar, I have absolutely no scar at all 😄

There must have been a misunderstanding some where between My GP the hospital and myself. My GP left me a voice mail last week saying I was having the CT scan late afternoon today, but I hadnt recieved a letter from the hospital yet.

So I rang the doctors surgery and asked to speak to my GP, he wasnt there.
So I rang the radiology department at the hospital and explained that my GP had left me a message about the appointment and that it had been an urgent referral Blah, Blah, Blah. Radiology told me that the referral was not down as being urgent, there was no way in hell I was getting scanned today and that a letter fo an appointment was on its way to me in the post and I could be waiting another 3wks before having the scan done.

So I guess for the time being I'll just have to bash my skull in on the wall until the pain and the migraines stop! 🙄 😂

Which reminds me I need to put in a repeat prescription for Maxalt and Tramadol. nearly out not good 🙁 Guess I have to see my GP 2moro I dont think I can get those on repeat with out him seeing me.

you have to wait a month...?? damn ...the migraines...umm I seem to remember that wifeys doc said when she use to have hers to much caffeine contributed but then I never understood that as excedrin migraine medicine has caffeine in it???maybe something to look into to in mean time???

I drink decaf coffee and decaf soft drinks. so not caffine. I avoid dairy products (especially cheese and chocolate) and strong light and smells too. still no luck. I've been migraine free for a few days but still have a headache but I can deal with it.

Don't have anything made with RED dye like jello, pop, candy, frostings and such stuff. I hear that has helped with headaches.

Originally posted by Lara
Hi all,

I'm hoping some one can help me on this one.

After years of having lots of really odd seemingly unconnected health problems I was referred to a rheumatologist on the grounds of worsening Raynaud's syndrome.

I saw the specialist on saturday morning and she seems to think I have Lupus and is sending me for a whole barrage of blood tests.

Does any one here suffer with Lupus or have relatives with lupus? Any advice is very welcome. This quite worrying to me. The specialist also wants my mum to get tested as she came with me, and the Dr found our skin pigments quite interesting.

No one I know have Lupus. Hope you feel better.

The only thing I have is lack of Iron in my blood. Sooo....I just...gotta feel....so sleeepy.....zzzz.

I think multi-vits with added iron help with that or the Dr can prescribe some thing for it. I do hear that iron sups to bind you up tho 😖

my doc told me I could double or triple my script on ultram to counteract the pain...ask your doc if that would be okay... the tramadol helped me

Originally posted by Lara
I think multi-vits with added iron help with that or the Dr can prescribe some thing for it. I do hear that iron sups to bind you up tho 😖

Ok so saw my GP on monday he was furious that I hadnt had the CT scan when he had scheduled it (last thrusday) god knows what he said to the hospital but 5mins after leaving the surgery I had a call from the radiology dept asking if I could go in that afternoon for 3.50 to have the scan done.

So scan out the way and just waiting for the results. My GP told me to keep my phone on and charged. I think he is going to phone the results through to me. I will either get them today or tomorrow.

I know it sound pissy but I'm really starting to get worried about this, as most of the tests have come back inconclusive. the most they have turned up so far is low chlorestral, low vit D and abnormal LFT. I think if this shows up nothing I'm up for a contracts CT or MRI.

Getting really fed up. 😐

Low cholesterol is a good thing though. 👆

*crosses fingers for good news* 😊

Originally posted by Lara
Hi all,

I'm hoping some one can help me on this one.

After years of having lots of really odd seemingly unconnected health problems I was referred to a rheumatologist on the grounds of worsening Raynaud's syndrome.

I saw the specialist on saturday morning and she seems to think I have Lupus and is sending me for a whole barrage of blood tests.

Does any one here suffer with Lupus or have relatives with lupus? Any advice is very welcome. This quite worrying to me. The specialist also wants my mum to get tested as she came with me, and the Dr found our skin pigments quite interesting.

My step mother has Lupus skin cancer. It doesn't seem to be too serious because she's known to have it for about 15 years now. Of course there may be different stages and seriousness of the condition. She just can't stay in the sun for long periods at a time.

well bloods are back nothing showed apart from a vitamin D deficiency. I'm really stumped. I have a funny feeling they are gonna say ME/CFS. no CT results yet, I get them monday now.

^hope lady luck smiles on you

And she did indeed! CT results were normal. I've been put in pizotifen as a preventative for a trial month. Will be referred to neurologist soon. Still dont see rheumy til june.

The fun will be when she says "There is nothing physically worng with you"

doesnt explain why I'm fighting to get out of bed every day with all sorts of odd symptoms.

^same here. sumtimes i feal like doctors are useless shits! lol, ****ing pyrexia of unknown origin. but glad to know your healthyER than you cud have been.

😂 thanks 😄

Originally posted by Lara

doesnt explain why I'm fighting to get out of bed every day with all sorts of odd symptoms.

B. H.

yeah its really bad health when I'm a physically healthy 22yr old.

So far all they have found is a vitamin D decifiency which I'm taking suppliments twice a day for.

just seems like one big sh*tty enigma. 😐